Since my husband got PE, I had been hearing about it all the time (I wondered why I didn’t know that at all 3 weeks ago). I have a client who had PE on the same weekend when my husband had his go. Then today I’ve got another phone call from a client saying that her husband just passed away last night in the Emergency Department in Bega Hospital because of PE. WHAT THE HELL????????

I told what I heard to my husband. It’s really hard sitting there imagining that you almost died or you could have died when the worst part is all over. You sort of couldn’t link the thing to yourself and it takes time to realise you are no longer an outsider but someone IN the situation.

Anyway my husband has been to the Doctor’s for his normal INR blood test today and part of the previous blood test results had come back. They found there could be some genetic reason, called Protein C Deficiency, caused PE on him, which means it runs in the families (inherited) and he was not made properly when he was born

His Protein C studies shows that he had way too low value that was 18 (the normal people’s Protein C ranges from 70-130). It’s a rare genetic disease and was only first described in 1981.The prevalence of protein C deficiency has been estimated to about 0.2% to 0.5% of the general population. In China, the chance to get Protein C Deficiency is about one in every 16,000 people ( Well, we both reckon we should go buy lottos).

So it’s good news and bad news. Good news is that we kind of know what causes the problem, and the bad news is that if that is the case, my husband probably has to take “rat poison” (Warfarin) for the rest of his life.